Receiving a diagnosis of autism for your child can be an overwhelming and uncertain time for any family. Many parents, before confirming a diagnosis, have already been going through moments of doubts, medical appointments, fears, hopes, exams, neurologists, neurodevelopment evaluations, family conversations and others that are part of that initial path. All of this because we know that there is something that is different from typical development, even though we have not yet given it a name. Autism is a neurodevelopmental disorder that affects communication, behavior and social interactions to a greater or lesser extent. Each child is different and the abilities they develop will be as varied as individuals within the spectrum, which is why an analysis of the areas of development must be evaluated by a trained professional, such as a neurologist, based mostly on behavioral observations, since until now there is no blood test to confirm this.
Once the doctor confirms the word "autism" we are left speechless, everyone reacts emotionally differently to this diagnosis, but the truth is that in any case we enter a process where we must grieve. Initially there will be moments of anger, moments of guilt, anguish and pain. We must let go of our idea of what motherhood would be like as we know it and begin this new reality. Once we accept our new reality, where we must learn that neurodiversity exists and that the way of thinking, expressing, feeling and behaving can be very different in each person, our learning and enjoyment will begin.
Finding empathetic professionals who connect and show a desire to help our little ones while respecting their individuality can be a challenge, but it is not impossible. This will mark a much easier path to travel for both of you and with greater scope for long-term results. With the right support and the right information, you can help your child reach their full potential and lead a full and happy life.
We've outlined some steps that might help after an autism diagnosis:
Education and understanding
The first step is to learn as much as you can about autism. Consult books, online resources, talk to parents in the same situation and health professionals to better understand the disorder and how you can help your child. The more you know, the better. Websites like Autism Research Institute and Autism Speaks are very helpful in understanding Autism and how to deal with it.
Seek professional support
Find a team of health professionals who can provide appropriate assessment and therapy. This may include psychologists, behavioral therapists (ABA), speech therapists (Speech), occupational therapists (OT), and pediatricians specializing in neurodevelopment. Early and appropriate intervention can make a big difference in your child's development. We recommend that you do a thorough search for service providers in your area so that you can assemble a team that respects each child's identity and works based on the individual needs of the child and family.
We know how overwhelming it is to understand the processes and variants to be able to begin therapies and treatments, that is why at NeuroDverse, in addition to ABA Therapies, we offer guidance about the steps you should take and where to turn depending on your situation, regardless of whether you need or not our services. Contact us and we will gladly guide you free of charge and without obligation.
Connect with other parents
Join local or online support groups where you can meet other parents who are going through similar experiences. Sharing experiences and advice can be comforting and provide a sense of community. There are communities like My Autism Team where parents can share their concerns and opinions as well as learn from the experiences of other parents.
Long term planning
Work with professionals to create an individualized plan for your child. This may include educational and therapeutic goals, as well as strategies to address specific challenges your child may face.
Effective communication
Learn to communicate effectively with your child. Some children with autism may have difficulty expressing their needs and emotions. This is where ABA (verbal behavior) and speech therapies can be very useful. Talk to your team about this point and what the short and long-term objectives are to develop these skills if your child requires it.
Encourage social development
Help your child develop social skills by providing opportunities to interact with other children and adults. Group activities and play sessions are great for this. Many times children with autism will need guidance to initiate and maintain social contacts. You can check out this video on our YouTube channel that talks about this topic "How to improve social skills in children."
Routine and structure
Children with autism often benefit from predictable and structured routines. Establish a daily routine and provide clear instructions. The use of visual schemes can be a great ally.
Encourage special interests
Many children with autism have special interests. Encourage these interests, as they can be a source of motivation and strength for your child.
Patience and unconditional love
Remember that progress can be gradual and that each child with autism is unique. Be patient and show unconditional love to your child every step of the way.
Self-care
Don't forget to take care of yourself and your family. Caring for and raising a child with autism can be challenging, so it is important to seek emotional support and take the time to recharge.
In short, receiving an autism diagnosis can be challenging, but also the beginning of a journey of love, growth, and learning. With the right support and a positive approach, you can help your child reach their full potential and live a fulfilling, independent life.
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